||Children’s Oncology Services, Inc. (COSI) believes that a diagnosis of cancer should not prevent a child from experiencing the simple joys of childhood.
Through the One Step At A Time programs, COSI offers camp experiences and other educational and excursion programs throughout the year that allow children with cancer to just be kids. Our programs offer fun, friendship and support in a safe and nurturing environment.
This weekend IA was lucky to have our buddy and founder of Single Jingles, Matt Ferstler, in town from Austin, TX. Matt is an Angel and a testicular cancer survivor. After losing one of his “jingles” to cancer, he teamed up with another survivor and started the organization to raise awareness.
Testicular cancer is the #1 most diagnosed in young men. Check out Single Jingles for more info!
“The only thing better about the name ‘Single Jingles’ is the message that it carries!!!! Matt Ferstler created Single Jingles to make young men more comfortable about discussing testicular cancer – the #1 most common cancer among young men in America – to educate and create awareness to increase early detection… And save more lives!!! What we need in the testicular cancer world is a FUNNY name like Single Jingles to make guys laugh!! We need to make them laugh and get comfortable in order to get more people to talk about it!!! As a 2x testicular cancer survivor, I will do everything in my power to help Matt Ferstler and the Single Jingles to make the testicular cancer world a safer and better place!!! Great job Matt!!!” ~Jonny
The Cancer Legal Resource Center (CLRC), a joint program of the Disability Rights Legal Center and Loyola Law School Los Angeles, is the only national, dedicated center for the provision of information and resources on all types of cancer-related legal issues to patients, survivors, caregivers, and health care professionals. While it should not take a lawyer to access health care or preserve one’s job, having knowledge of legal rights and options facilitates that access.
The CLRC will be hosting two, free, national Cancer Rights Conferences in 2010. The first conference will be on Friday, June 18, 2010, in Chicago at Loyola University Chicago School of Law, and the second on Friday, October 8, 2010, at the Ronald Regan UCLA Medical Center in Los Angeles.
The Cancer Rights Conferences will each bring together 200 members of their respective regional cancer communities including patients, survivors, caregivers, healthcare providers, advocates, employers, and business and community leaders. Attendees will gain valuable knowledge about employment issues, navigating managed care, estate planning, consumer rights, and health, disability, and life insurance options. Healthcare professionals will learn how to conduct clinical assessments on cancer-related legal issues and resources for their patients.
To register or for more information please visit www.CancerLegalResourceCenter.org or call (213) 252-8449.
This past weekend the IA crew attended the 3rd Annual OMG Summit, sponsored by I’m Too Young For This! Foundation for young adults (one of our advocacy partners).
The summit aimed to bring together advocates from all over the country for a mindshare around topics such as social media advocacy, oncofertility, employment/insurance and more. Panelists included Jonny Imerman, Brad Ludden (First Descents), Matthew Zachary and Jack Bouffard (iy), Adam Ostrom (Editor of mashable.com), as well as representatives of several additional charities, health care providers and writers.
Through this networking event, we were able to register new survivors who can now share their knowledge and experience with others who are fighting a similar battle. As young adults are the most underrepresented demographic in the cancer community, this is a huge win!
For more information, follow this link to the offical website.
Jonny had a great time speaking and mingling with new angels and members of the IA community at MD Anderson’s RISE TO ACTION, an annual young adult survivor conference in Houston. MD Anderson is the largest cancer center in the world!
RTA is an educational and leadership development program for young adult survivors of cancer in their teens, twenties, and thirties. RTA aims to help survivors learn how to manage their follow-up care and deal with issues unique to them. It also aims to engage survivors as advocates — for themselves and other fellow survivors — to raise awareness and action around shared interests and challenges faced by their growing community.
RTA workshops and conferences are conducted in partnership with community and national cancer organizations, hospitals, long-term follow-up clinics, and other health-related groups.