Today  we paired up a 46 year old man with Stage 4 Pleomorphic Rhabdomyosarcoma from Maryland with 2 men close to the same age who beat this cancer 6 years ago in Ohio and California.  This is a particularly special pair up, as it is a very rare form of cancer.

What is Rhabdomyosarcoma?

A cancer that grows in the soft tissues of the body, most often in muscles, rhabdomyosarcoma is a rare disease that most often occurs in children and young adults, but can also occur in adults. Rhabdomyosarcoma are broken down into three different types: Embryonal (ERMS), alveolar (ARMS), and pleomorphic (PRMS). ERMS and ARMS typically occur in children and young adults while PRMS occurs in adults. Pleomorphic rhabdomyosarcoma is a rare tumor of skeletal muscle phenotype, and usually develops in the large muscles of the legs and arms. 

 

 

 

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Elizabeth, Jonny, Danielle

Jonny joined Elizabeth Saylor, Social Worker with the Ulman Fund, and Danielle Duran Baron at the University of Maryland Cancer Center on Wednesday.  The three cancer survivors had the opportunity to go room-to-room to interact directly with cancer patients, spreading hope and our mission of 1-on-1 cancer support.

UMGCC is listed among the top 50 cancer programs in the U.S. by U.S. News and World Report.  It is a self-proclaimed “state-of-the-art outpatient center” that strives to provide a central home base for cancer patients and their families.