Today we paired up a 46 year old man with Stage 4 Pleomorphic Rhabdomyosarcoma from Maryland with 2 men close to the same age who beat this cancer 6 years ago in Ohio and California. This is a particularly special pair up, as it is a very rare form of cancer.
What is Rhabdomyosarcoma?
A cancer that grows in the soft tissues of the body, most often in muscles, rhabdomyosarcoma is a rare disease that most often occurs in children and young adults, but can also occur in adults. Rhabdomyosarcoma are broken down into three different types: Embryonal (ERMS), alveolar (ARMS), and pleomorphic (PRMS). ERMS and ARMS typically occur in children and young adults while PRMS occurs in adults. Pleomorphic rhabdomyosarcoma is a rare tumor of skeletal muscle phenotype, and usually develops in the large muscles of the legs and arms.
IA Connects a young woman with Ovarian Cancer with a survivor across the country!
Last week we connected a 17 year old girl living in Pennsylvania fighting stage III Ovarian cancer with a 20 year old survivor from Portland, OR (but going to school here in Chicago) who survived stage III Ovarian cancer and is doing great. She is excited to give back and inspire others with her story! We also connected their Moms for caregiver support. It was the perfect family pair-up!
Our first pair up story: IA connects a Hodgkin’s fighter with two survivors:
Last week we connected a 24 year old woman living in Irvine, CA going through treatment for stage IV Hodgkin’s Lymphoma, with another 24 year old girl living in Rochester, NY who had survived stage IV Hodgkin’s. Because of the rare type of treatment regimen she was receiving, we also connected the fighter to another survivor, a 29 year old gentlemen living in Austin, TX who also survived HL and went through BEACOPP14.
The fighter was incredibly grateful for the opportunity to meet two different individuals who had “been there, done that” and could provide some inspiration and insight on her upcoming cancer journey. We already received great feedback that they’ve connected and spent hours on the telephone!